Technology these days is amazing. Mayo Clinic has an app – so I downloaded it on my phone a few weeks ago. It has campus maps and stuff like that, but the most amazing thing is that I have access to all of Tony’s medication information basically as soon as it is available. Lab results, doctors notes – it’s as if I have an electronic file of Tony’s whole medical file since he’s been here. I don’t think I’ve ever seen or read anything from my medical file!
One of the cardiologists is big and boisterous. He actually reminds me a lot of my Uncle Dave. Anyway, Tuesday night he stopped by to introduce himself. He discussed that the main goal was to get all the fluid off so that we can get his heart biopsy today. Yesterday I was able to log onto the app and read his notes. So I am reading the last paragraph out loud to Tony and the doctor ended the notes with “discussed the plan of action with patient and his daughter.” The doctor thought I was Tony’s daughter, not his wife! That made us laugh so hard! (and for the record, I am only 7 1/2 years younger than Tony).
So yesterday morning this doctor came in and took one look at Tony and said “why didn’t you tell me you were a mess?” Somehow overnight Tony’s blood count dropped substantially – they had to give him an emergency blood transfusion and as of last night, he’s gotten 4 units. His kidneys also weren’t functioning, so they have to figure out why he’s losing blood and that’s there focus now. He’s nowhere near getting his heart biopsy done, and my guess is that it won’t be until sometime next week.
Luckily his kidney ultrasound didn’t show any signs of constriction or anything, so they need to concentrate on his blood right now and figure out what’s causing what. We both were thinking that if we had waited until yesterday to come here, it really night have been too late to save him!
So I confessed on Instagram that I may have had more than one share of cheese spread and crackers the night before last. I am an emotional eater and I am by myself. Trouble with a Capital T. So I decided to bring all my food with me yesterday. Down the hall from Tony’s room is a family waiting room. It has a full fridge. microwave, etc.
They had a package with stickers and a Sharpie, and I labeled my food and dated it.
On the drive to St. Mary’s I had a piece of my granola and some cheese. I wasn’t very hungry!
When Tony got back from his ultrasound, I heated up my leftover chicken stir fry.
I brought a serving of my Cincinnati Chili for dinner, but wasn’t really feeling it. Blog reader Joanne (Hi Joanne!) who has been to Mayo and St. Mary’s for medical issues suggested a café that was right across the street from St. Mary’s. I really needed to get some fresh air, so while Tony waited for his hospital food, I walked across the street.
While I saw the fried cheese curds on the menu:
I ordered a pork souvlaki pita with tzatziki sauce on the side and a lime chili cole slaw instead of fries.’
I liked that the dressing was on the side, but it was chopped up bok choy and cabbage and didn’t have a ton of flavor. The pita was pretty good though. And you can’t beat the price of $5.25.
While Tony naps I’ve found myself downloading stupid apps – check this one out – it’s called Face Juggler! It looks like I am smoking Tony’s cigar! Hahahaha!
Thanks again for all your comments to yesterday’s post. I feel much better today and will pull on my positive pants before leaving the hotel this morning. Your kind words, emails, etc. are what are keeping me going. THANK YOU!
Now one more time, don’t forget to vote or my Pan Seared Pork Chop Recipe Contest Dish! I wish there was a way to see who was in the lead, but I guess we’ll just have to wait. Thank you for voting!
Off to shower and head to St. Mary’s – hopefully Tony got some sleep last night. Make it a great day!
Ah Biz, I did get quite a smile out of the “daughter” notation – and I am completely not surprised by it.
And laughter helps everything, doesn’t it? And Tony having you there to make him laugh, no doubt….
It isn’t the greatest news…fluid and blood transfusions? But they’re keeping him stabilized and working towards the goal. I am glad you will be able to be with him, that is even more important. Believe me.
I am glad you are eating and getting your steps in…take care of you. Still voting our little hearts over here.
Love you Biz. Praying and hoping and sending good thoughts. I wish I was there.
Voting and sending healing thoughts towards you and yours.
Morning Biz……still thinking of you both and still voting! May your day be filled with strength and peace of mind.
Thanks for your positive thoughts and for your vote!
Hugs and prayers for you and Tony.
Thanks Maria! 😀
Thinking of you both a lot. Hugs, prayers, hope and optimism. You’re ability to carry on is remarkable and inspiring.
Thanks Leslie – I have my moments but try to keep looking at the bright side of everything. 😀
Hello, first time here. Hopped over from Abbe’s blog (This IS How I Cook) I’ve put in my vote. You are so amazing. Big hug!
Thanks for stopping by Sharon! I love Abbe’s food!
Continued thoughts and prayers.
Thanks Jamie!
The one good thing is that you guys are at one of the best places in the world to be to figure this stuff out.
Make sure you get some ‘me’ time while you are there. Maybe hitting up a thrift store? There has to be one near the clinic.
As a matter of fact Lori – I’ve already been to the big Goodwill here twice!
I’m so sorry I’m way behind on my blog reading! Definitely hope they find out soon what is happening to Tony.
That’s okay – I enjoy seeing all the pictures on Instagram of your walks!
Keeping you in my thoughts and hoping your “dad” 🙂 gets some answers about everything going on. Yes, you need to take care of you too! Ask for help and know that it is okay to do so. You keep us all motivated, upbeat and positive all the time. Hugs, Hugs, Hugs!
Thank you so much Kym! I feel the hugs!
I haven’t been blog reading (or writing) for a while but a couple mutual friends posted to vote for your recipe so I’ve done that twice. I hope you win! Gosh, I can’t imagine going through all you both are going through right now. My heart and prayers go out to you. <3 <3 <3
Thanks V! I appreciate the votes! Your son is getting so big!