Technology these days is amazing. Mayo Clinic has an app – so I downloaded it on my phone a few weeks ago. It has campus maps and stuff like that, but the most amazing thing is that I have access to all of Tony’s medication information basically as soon as it is available. Lab results, doctors notes – it’s as if I have an electronic file of Tony’s whole medical file since he’s been here. I don’t think I’ve ever seen or read anything from my medical file!
One of the cardiologists is big and boisterous. He actually reminds me a lot of my Uncle Dave. Anyway, Tuesday night he stopped by to introduce himself. He discussed that the main goal was to get all the fluid off so that we can get his heart biopsy today. Yesterday I was able to log onto the app and read his notes. So I am reading the last paragraph out loud to Tony and the doctor ended the notes with “discussed the plan of action with patient and his daughter.” The doctor thought I was Tony’s daughter, not his wife! That made us laugh so hard! (and for the record, I am only 7 1/2 years younger than Tony).
So yesterday morning this doctor came in and took one look at Tony and said “why didn’t you tell me you were a mess?” Somehow overnight Tony’s blood count dropped substantially – they had to give him an emergency blood transfusion and as of last night, he’s gotten 4 units. His kidneys also weren’t functioning, so they have to figure out why he’s losing blood and that’s there focus now. He’s nowhere near getting his heart biopsy done, and my guess is that it won’t be until sometime next week.
Luckily his kidney ultrasound didn’t show any signs of constriction or anything, so they need to concentrate on his blood right now and figure out what’s causing what. We both were thinking that if we had waited until yesterday to come here, it really night have been too late to save him!
So I confessed on Instagram that I may have had more than one share of cheese spread and crackers the night before last. I am an emotional eater and I am by myself. Trouble with a Capital T. So I decided to bring all my food with me yesterday. Down the hall from Tony’s room is a family waiting room. It has a full fridge. microwave, etc.
They had a package with stickers and a Sharpie, and I labeled my food and dated it.
On the drive to St. Mary’s I had a piece of my granola and some cheese. I wasn’t very hungry!
When Tony got back from his ultrasound, I heated up my leftover chicken stir fry.
I brought a serving of my Cincinnati Chili for dinner, but wasn’t really feeling it. Blog reader Joanne (Hi Joanne!) who has been to Mayo and St. Mary’s for medical issues suggested a café that was right across the street from St. Mary’s. I really needed to get some fresh air, so while Tony waited for his hospital food, I walked across the street.
While I saw the fried cheese curds on the menu:
I ordered a pork souvlaki pita with tzatziki sauce on the side and a lime chili cole slaw instead of fries.’
I liked that the dressing was on the side, but it was chopped up bok choy and cabbage and didn’t have a ton of flavor. The pita was pretty good though. And you can’t beat the price of $5.25.
While Tony naps I’ve found myself downloading stupid apps – check this one out – it’s called Face Juggler! It looks like I am smoking Tony’s cigar! Hahahaha!
Thanks again for all your comments to yesterday’s post. I feel much better today and will pull on my positive pants before leaving the hotel this morning. Your kind words, emails, etc. are what are keeping me going. THANK YOU!
Now one more time, don’t forget to vote or my Pan Seared Pork Chop Recipe Contest Dish! I wish there was a way to see who was in the lead, but I guess we’ll just have to wait. Thank you for voting!
Off to shower and head to St. Mary’s – hopefully Tony got some sleep last night. Make it a great day!
Ah Biz, I did get quite a smile out of the “daughter” notation – and I am completely not surprised by it.
And laughter helps everything, doesn’t it? And Tony having you there to make him laugh, no doubt….
It isn’t the greatest news…fluid and blood transfusions? But they’re keeping him stabilized and working towards the goal. I am glad you will be able to be with him, that is even more important. Believe me.
I am glad you are eating and getting your steps in…take care of you. Still voting our little hearts over here.
Love you Biz. Praying and hoping and sending good thoughts. I wish I was there.
Voting and sending healing thoughts towards you and yours.
Morning Biz……still thinking of you both and still voting! May your day be filled with strength and peace of mind.
Thanks for your positive thoughts and for your vote!
Hugs and prayers for you and Tony.
Thanks Maria! 😀
Thinking of you both a lot. Hugs, prayers, hope and optimism. You’re ability to carry on is remarkable and inspiring.
Thanks Leslie – I have my moments but try to keep looking at the bright side of everything. 😀
Hello, first time here. Hopped over from Abbe’s blog (This IS How I Cook) I’ve put in my vote. You are so amazing. Big hug!
Thanks for stopping by Sharon! I love Abbe’s food!
Continued thoughts and prayers.
Thanks Jamie!
The one good thing is that you guys are at one of the best places in the world to be to figure this stuff out.
Make sure you get some ‘me’ time while you are there. Maybe hitting up a thrift store? There has to be one near the clinic.
As a matter of fact Lori – I’ve already been to the big Goodwill here twice!
I’m so sorry I’m way behind on my blog reading! Definitely hope they find out soon what is happening to Tony.
That’s okay – I enjoy seeing all the pictures on Instagram of your walks!
Keeping you in my thoughts and hoping your “dad” 🙂 gets some answers about everything going on. Yes, you need to take care of you too! Ask for help and know that it is okay to do so. You keep us all motivated, upbeat and positive all the time. Hugs, Hugs, Hugs!
Thank you so much Kym! I feel the hugs!
I haven’t been blog reading (or writing) for a while but a couple mutual friends posted to vote for your recipe so I’ve done that twice. I hope you win! Gosh, I can’t imagine going through all you both are going through right now. My heart and prayers go out to you. <3 <3 <3
Thanks V! I appreciate the votes! Your son is getting so big!
I hope today brought some encouraging news. All this sounds pretty frightening. Y’all are in my thoughts and prayers, you are so strong! Virtual hugs going your way!
Thanks Kim – I feel them!
Hugs from Iowa:). I’ve been thinking and praying for you guys!
Thanks Ally – I love seeing your baby’s dark hair – she is just too cute!
Hi, Beth,
Tom and I have been thinking about you guys so much. Tom would like to take care of that tree for you, if that’s ok. Tell Jeff hello from us, and if there’s anything else we can do, just say the word. I continue to be inspired by the two of you. The Olson’s. 🙂
You guys are so awesome! Thank you so much – you guys will get lots of firewood for your fireplace!
I’m so glad y’all drove up when you did so that Tony was already in the hospital when things really seemed to be getting worse!
Me too! 😀
Hugs to you. Continued prayers go up for you and Tony.
Thanks Karli! So excited for big weekend at the Paris Street Market!! Good luck!
http://kindredstyle.blogspot.com/2014/08/friday-fun-day-surprise-for-our-readers.html
Hey you! Sounds like you are hanging in there! And with what’s been happening there is no better place to be than where you are. Great that you have your food, but from past experiences in hospitals, it is good to get a change of scene sometimes. Take lots of care!
Thanks Abbe again for that great post you did of me – I meant to link to it this morning and I forgot – hugs!
Thinking of you! xoxo
Thanks Erin! I need to catch up on your blog to see if you wrote about your husbands health – sending hugs to you too and hope find some food that he finds good to eat!
Another 4 votes casted and continued prayers for you both. In all of this insanity, have you had any time to do any physical activity? You need to take care of yourself, so you can take care of Tony. Even it is walking in the hallways, walking up the stairs instead of taking the elevator, just move. It will help fight hospital stress too! You inspired me to get back moving and being more active and I am now riding my bike 30+ miles a week. Hang in there Beth, we are all praying for you both : )
Yep, I now go on 30 minute walks outside a couple times a day to get my steps in – it is a great break in the day. Great job on all those bike miles!
It sounds like you & your “dad” are right where you need to be for Tony to get the best treatment! Sending hope that all will be ok!!!!
Thanks Becky!
Sending a big hug your way and lots of prayers to Tony. It’s wild how you can access so much information now. I think it’s important for patients to be able to view that information because often times it’s difficult to remember everything you’re told during an appointment.
I’m voting for you. My husband is too (even if he doesn’t know it!). I will keep sending good thoughts your way. Take care of yourself too Biz.
Thanks Aimee – you being a nurse you know exactly what we are going through. Thanks for voting (and your hubs too!)
I hope it all gets figured out and something can be done soon to get Tony back on his feet. It’s so hard to keep waiting to just get through the testing process and in the meantime something new pops up. UGH! On another note…Fried cheese curds are hard to resist, but fresh are the best -especially if you get them the same day they’re made. They’re so squeaky and pillowy like marshmallows…oh excuse me, I just had moment. I’m back now 😉 Keep smiling and laughing when you can. Peace.
Yep, when my Mom used to buy us cheese at the farmers market when we were little, it was squeaky and I am sure that’s when my love of cheese was born!
Wow that is so scary! Praying and wishing for all the best. So glad you guys went earlier to the hospital! Hang in there and great job on taking back control of the emotional eating!
Thanks Amanda, I had to nip that emotional eating in the bud before it got out of control!
I hope you found Tony this morning doing and feeling better. It sounds like the doctor has a good sense of humor. Laughing can be so good for people. Across the street from St. Marys is another restaurant, “Canadian Honker”. It costs a little more to eat there than Cafe Pesto does. But the food is pretty good. Just an idea for a change of scenery for you. Hope today goes well for Tony and you – keep your spirits high. Voting every day.
I walked by that place yesterday on my walk – I may need to do take out from there!
Daughter ha! You need to just take that as a compliment.
You better believe I did! He just must not have seen my grey hair in the hospital lighting! 😀
Make it a great day, too, Biz!
Thanks Heather! I was totally thinking of you last night because I was watching the Crossfit Games – holy balls those were some fit men and women!
Hang in there!
Thanks Christine – hugs!
A sense of humor is good medicine. I hope that Tony gets some good answers and treatment very soon. Until then, try to keep smiling.
Best,
Bonnie
Thanks Bonnie – I appreciate it – and I agree, laughter is sometimes the best medicine!
Just voted! Remind us every darn day! Sorry to hear things are still all over the place. Hope they get everything under control. Great job on all the eats. Hilarious that they thought you were his daughter <3<3
Don’t worry E – I will be reminding you to vote for the next 21 days! 😀
Have been voting every day! I hope you know how much love and white light is being sent to you and Tony from Colorado. You both have really been through rough water the past few months. We care about you! Take care!
Thanks Dana – I feel the love from Colorado! 😀
I’ve been thinking of you and Tony every day for the past few weeks, and I’ve been voting on your recipe, hoping that in some weirdo way, it’ll send good vibes and positive outcomes your way. I pray that the doctors discover the cause of Tony’s problems and can fix them…and I pray that you continue to have the strength to be the positive one. Take care, Biz!!
Thanks Lisa – I appreciate it!