Time seems to stand still when we go to the hospital. Nothing ever happens as soon as anyone says it will. if they say “you’re going down for a kidney ultrasound in just a little bit.” That could mean anywhere from 30 minutes to six hours. And while I am at the hospital from 6:15 to 8:15 every morning and 5:30 to 9:30 every night, I still have yet to have a conversation with his kidney doctor – the one who has ordered Tony’s dialysis. One doctor came in and told Tony he would for sure be there through the weekend. Another one came in and said we won’t know if the dialysis is working until mid to late next week. Another one came in and asked if we had made a decision on where we wanted to transfer for a transplant. What?! So we are just taking it a day at a time. Easy for me to say because I am not the one lying in a hospital bed, but I know this is getting old for Tony. I guess if we had a clear path on where we were going it would be easier, but his liver doctor did say last night “healing takes time. Be patient.”
I had to pick up an extension cord for Tony to plug his phone in. All the outlets are behind his bed and his charger cord isn’t long enough. I just stopped by the store on the way to work and ended up picking up donuts for the office – on Fridays at my store they have day old donuts – 4 for $1!
But when I got to the office kitchen, I wondered if they even deserved donuts – my biggest pet peeve at work? Dishes in the sink when the non full dishwasher is literally right next to the sink.
I had one of my usual breakfasts – egg/spinach/breakfast sausage microwave omelet with cheese and a piece of toast.
Work was so busy, but I actually felt like I was doing the job they are paying me for. Most of the time it’s slow, I ended up just filing emails, making scratch paper out of leftover print jobs that no one picks up. It reminded me of how my job used to be back in the day. At one legal secretary job I had, it was a 24 hour desk. Three 8 hour shifts. When my day shift was up, I’d let the next secretary know where I left off – it was that busy that the desk could be manned 24 hours a day!
But now attorneys are so self sufficient. The young attorneys know Excel better than I do. Most of the filing is electronic and no one does dictation anymore since there is voice recognition software. My job is slowly becoming obsolete. Around 11:30 my boss asked me to pick up lunch before I got my next set of revisions. Since I fly, she buys, so I ended up getting the pork carnitas flatbread from Panera.
Um, not a fan. First of all, the inside really didn’t have much flavor – had it not been for the salsa verde, I would have just thrown it out. Also it said there was corn and black beans mixed with the pork. At no time did they mention onions, but there were there.
I literally finished what I had to get done at 4:45. I knew I didn’t want to work late, so whew! It was a relief to go to the hospital just to sit down. By the time I got there around 5:20, I had already walked 11,200 steps!
He still had two hours of dialysis to go when I got there. Two nurses took turns monitoring him. They were both super nice. It wears Tony out though.
Around 6:45 I went down to get dinner. I’ve talked about the cafeteria food before and how it looks and tastes like ass. So it was my standard two chicken finger salad for dinner. I have to admit – it’s really tasty. The beans, banana peppers and craisins make it for me.
I stayed later last night since it was Friday night, and got home about 10:30. I was so tired I just wanted to crawl into bed, but I checked email, etc. for about 30 minutes before calling it a night. I did get a badge from Fitbit though – since I’ve been wearing it since March, I’ve walked 750 miles!
And after walking to and from the hospital, I ended up with:
Not bad considering I never made it to the gym yesterday! I have a yahoo email account that I just use for football picks with Tony, my step-son and his wife. One of the stories said that Jessica Simpson sold her home for $7 million dollars to actress Jennifer Lawrence. I died when I saw the picture of the kitchen. Isn’t Jessica Simpson the one who thought chicken was in a can of tuna because the brand name was “Chicken of the Sea?”
I haven’t been doing much cooking at all this last week, but got up early to bring some muffins to the nurses. My store had a coupon the other day, buy two packages of any kind of Hershey morsels, get one free. So I got dark chocolate, cinnamon chips and peanut butter chips. Tony is the banana eater in our house, and with him gone this week, they were on their last legs, so banana muffins it was! But I wanted to make them a bit different, so I decided to make a cinnamon chip streusel to go in between the batter.
My step-son would go ape shit over these muffins because he LOVES all things cinnamon. Joe, the next time I see you, I’ll be making these for you!
[amd-zlrecipe-recipe:102]
Since I started with the streusel on the bottom, it had a nice crunch cinnamon bite to the bottom of the muffin. Light and airy. I think these are my favorite muffins I’ve made to date. Well, I don’t bake much so that’s not saying much, but these are a winner, especially if you have a cinnamon lover in your house because this muffin punches you in the face with cinnamon flavor.
Alright, I am off to jump in the shower and head to the hospital. We will know after morning labs if more dialysis is on the menu today. Enjoy your weekend! It’s in the low 20s here and we may get 2-3 inches of snow tonight. Ugh. Thanks again for all your comments/emails/facebook messages – I will catch up and respond to them all this weekend. Hugs!
Like I said – just catching up [sick of me yet? hee] Tony is strong, we know this, and being in the hospital AND on dialysis has got to just add to the angst. I avoid it all cost [hospital] because I can’t stay in bed. But sometimes ya’ gotta do, what ya’ gotta do, eh? [Don’t you love stupid cliches ::eyeroll:: I am full of ’em].
You made me laugh about Jessica Simpson. That kitchen wasn’t wasted on her though – that is definitely a caterers kitchen, for parties and such. The house has another, smaller kitchen for her to open her cans of tuna. 😉 First time I saw a mansion like that with TWO kitchens and one looked like that – I about fell over. I covet those ovens. OMG. I can imagine what YOU could whip up there.
Take care my friend, my friend. Give my love to Tony – some for you too. <3
So sorry you both have to go thru this. Will you go back to Mayo or stay close to home? Hopefully, the transplants will take care of everything and Tony will be healthy again.
I have to go to the hospital tomorrow for one last check on my vocal cord. Last time my appointment was in the afternoon and I had to wait so long. This time I asked what day they had where I would be the first patient so I won’t have to wait 🙂 which is tomorrow.
My job has changed over the years too. But I always look around and listen and over the years I have got some new/other work because I asked for it. Lately I’m in charge of handling product reviews on our website. It came around and I jumped in and asked if I could do it and I could.
Hope the last check on your vocal cords turns out okay – that is still such a weird thing to happen! Sadly, I work at a small firm, it would be different if I worked in a bigger firm.
Yes it did, completely healed, don’t have to go back. I used to work at a small firm but now it’s a little bit bigger which I prefer more.
Oh, Beth. Haven’t been on Feedly in a few days, so I was sort of surprised at your news. I kinda thought something might be going on, tho. Please let us know if either of you need anything; we are close. Sending hugs and prayers to you both from Tom and I. <3
Thanks Maripat – I appreciate it! 😀
Sorry to hear Tony Jeff is still laid up in the hospital. Glad you were able to get bizzy in your kitchen, though. Those muffins look amazing! I love anything cinnamon or cinnamon/sugar, so I will totally be making these. I’m going to have to find an egg substitute though, because we just found out that B is allergic to eggs! All this time we thought it was dairy that bugged him…
Hope this week brings you good news! Tony Jeff is in my prayers, as you are too!
Can he do liquid egg whites? I think even egg substitutes have some egg in them. Thanks for the prayers Erin!
Yes the nurses are well worth the muffins but your coworkers…I’m not so sure you should be spending money and time getting them doughnuts. Hopefully the dialysis will make Tony feel better until they get some answers.
Thanks Kym – hugs!
Hospital time really is on a whole other plane. I wish they would just say “It will be several hours before we get to you.” and leave it at that.
I know, right Lori?!
Thinking of you guys!!!! And sending a big hug. Waiting and not knowing what is going to happen is soooooo hard…
Thanks Andrea, yep, the waiting is the hardest part 🙁
Hugs prayers and good thoughts to you and tony! But getting no info or 10,000,000 bits of different info doesn’t seem like it’ll help anyone heal… Isn’t there a way to get a single point person that you can talk to? Mass General has this but I know our smaller hospitals don’t… At any rate I’m sure you’re the favorite bringing yummy muffins!
Thanks Joy – we have our GP being our liaison, so to speak, it just took some time to iron our some differences of opinions – I think most doctors think they are right all the time? I think we are in a good place now – everyone seems to be on the same page 😀
Biz, I’ve been sad to read of Tony’s illness and hospitalization, and I’ve been impressed by your strength. Sending you good thoughts, prayers, comfort, and (((hugs))). I’d bring you dinner if I didn’t live 2,000+ miles away!
The muffins look great! You need to get that recipe in the banana recipe contest! 🙂
You are so sweet – and thanks for the reminder about the banana recipe contest – I’ve been so caught up with other stuff obviously – thanks 😀
Those muffins look soooo good! I am hungry even though I just ate dinner. Of course, every time I read your blog I get hungry! I hope it went well at the hospital today! Thinking of you both often throughout the day. 🙂
Thanks Christine – I appreciate it! 😀
So sweet of you to make muffins for the nurses – I’m sure they appreciated them! They look awesome!!
I hate when people leave dirty dishes or trash laying around – it’s like they think it is beneath them to put it where it should be.
Hope you get some answers and can figure out a plan with Tony and his Drs soon!
Thanks Kim – I think we are headed in the right direction now 😀
Also, I sometimes feel obsolete myself. I have been working on learning a lot more software – Excel and formulas to automate calculations and statistical analysis using JMP so that I can save time for other things.
I have SUCH a pet peeve about dirty dishes in the sink at work! We have people who work 24/7 (though way fewer now after the layoff), and I come in in the morning and sometimes there are dirty plates and cups in the sink. We don’t have a dishwasher.
I AM NOT YOUR MOTHER. It used to be worse before the layoff, so one guy and I would either wash the dishes and steal them (put them in my desk), or honestly throw them in the trash.
Thank you Marcia – glad someone agrees with my about the dirty dishes in the sink – I guess it’s more prevalent than I knew! I forgot to mention it to you, but I was a bit upset to see Nick’s school shirt all nice and clean in his picture this year – last years picture still kills me! Hugs!
biz-
You are so wonderful to bring donuts to your co-workers and make muffins do the nurses! I’m sure the nurses really appreciate things like that.
They really do – I may have a few new blog readers too! 😀
How sweet of you to make muffins for the nurses! It must be more than exasperating to keep getting different stories from different doctors–terrible communication!
I kind of now know why the process was so slow. Well, it’s basically because Tony has so many problems going on at once, they have to be very tactical about how they proceed – it’s just hard being on the waiting end though, ya know?!
One has to wonder if a patient’s physical health isn’t a bit compromised by the mental “torture” of not knowing what’s happening next or why or where, etc.. Hope the dialysis is doing what it should and you both have some answers soon. Oh, and I’d just leave those dirty dishes in the sink!!
Best,
Bonnie
Thanks Bonnie – I think next time I’ll leave them in the sink too! 😀
I can’t find a better copy of this, but this was funny. Jessica Simpson on SNL poking fun of herself over the chicken/tuna thing:
http://vimeo.com/56454479
I hadn’t seen that before Charlie – love it! Do you like tuna? I’ve made tuna salad for Tony before and just the awful smell when you open the can is disgusting, not sure how people eat it. 😛
Honestly, I can’t stand the smell of albacore tuna–I’m a much bigger fan of chunk light tuna from Spain and Italy because it’s not nearly as fishy and the species of tuna used for them are smaller and far more sustainable compared to albacore.